Workshops and courses
International Summer School on Rare Disease Registries and FAIRification of data
Date: 25 September - 29 October 2023
Language of instruction: English
Training on establishing high-quality rare disease registries and the FAIRification process, covering sustainability, legal/ethical issues, and hands-on data management.
Keywords: Rare diseases, Data management, Bioinformatics
Organizer: EJP RD, ELIXIR-IT, Istituto Superiore di Sanità (ISS)
Event types:
- Workshops and courses
Activity log
